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Making the Hospital Less Scary/Surviving Glycogen
Part One: Making The Hospital Less Scary It doesn't have to be terrifying to have your child go into the hospital! Have you heard of Child Life Specialists or Family-Centered Care? Those are two of the programs geared toward supporting you and your child during a hospital visit, and with their help, the hospital simply doesn't have to be so scary. Join host Dr. Winnie King to see how specially-trained hospital staffers can work with you and your child to reduce your stress, and learn how to find the hospitals and programs that will help you achieve that goal. Part Two: Surviving Glycogen Storage Disease Imagine having to feed your child eight times a day – every day – including in the middle of the night. Not just when he's a baby, but through adolescence and beyond. And if you miss or delay a feeding – because you oversleep or get stuck in traffic or run out of supplies – your child could have a seizure, suffer developmental delays, go into a coma, or even die. That's what life is like for families who have a child with Glycogen Storage Disease (GSD), a condition in which the body can't properly regulate its blood sugar. Join us as we step into the lives of one-year-old Felice, four-year-old Jonah, and 15-year-old Casey, who are all living with GSD, and learn how they and their families cope with this extraordinary challenge. And find out why evolving treatments and promising research are giving GSD families hope – hope for a normal lifestyle, and for a good night's sleep.
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